Body Language

Twisted Sister’s Jay Jay French and Dee Snider performing at the 2014 See-Rock Festival in Unterpremstätten, Austria. (Photo: Alfred Nitsch)

Six months ago, I nearly died. My gallbladder succumbed to necrosis, gangrene spread through the surrounding area and I slipped into sepsis. No one—least of all me—understood what occurred until it was almost too late. You see, my body failed to use the accepted communication mode: intense localized pain. So even with a substantially elevated white cell count and the inability to keep down so much as a mango sliver, then even an ice chip, it seemed to suggest that I was merely run down and would be fine once I simplified my schedule.

So even after the telling ultrasound results came in and my physician booked me a spiffy private room in the surgical ward of the local Hopkins hospital’s new pavilion, it refused to act like someone sick. And I unquestioningly did the same.  I not only drove myself there but also stopped for gas because I was concerned about fuel-line freeze. Even enjoyed the bemused look on the clerk’s face when I said, “I have a reservation” and he, after extensive checking, said, “Well, so you do.” Which I only came to fully appreciate after learning that admissions to that ward mainly originate in the ER or elsewhere in the hospital.

The seriousness of my situation started to sink in during the subsequent days, when I was kept on IV fluids, nutrients and antibiotics—nothing by mouth—and simultaneously subjected to endless invasive tests, all of which was required before my body was deemed fit for surgery. Which, in contrast, occurred with surprising suddenness on a Sunday afternoon. And resulted not only in the two tiny holes that a laparoscopic cholecystectomy required but also in a gruesome gash across most of my midriff. “This is the worst case that I have ever seen,” my surprisingly personable surgeon said as I smiled sweetly.

Which, this time, was incongruent, since my body had started to voice real distress the previous day. At first, it only emitted a series of nearly inaudible whimpers as I lay shivering in the dark recovery room. That soon turned into uncontrollable sobbing when no one came to so much as lay a comforting hand on my shoulder. But once I woke in my own nice room, where I had taken a seasoned day nurse’s advice to pre-operatively tune my TV to the channel that not only played “classical” music but also showed soothing nature scenes cleverly synchronized with the time of day, I assumed that the worst was over. My caring, competent night nurse certainly gave that impression, enquiring only about whether my body had yet managed to pass gas.

As soon as my vital signs were stable, I was transferred to a remote nursing and rehabilitation center that was touted as top-rated. By a rough ride along dark roads—commercial medical transport vehicles resemble WWII field ambulances—that my body did not like in the least. But preferred to the unceremonious welcome it received, which featured the medical equivalent of a prison strip search, where every inch of my skin, every orifice was rigorously examined. Not for my benefit, I learned from the laconic explanation, but to protect the facility from future liability. It took forever since each bruise—and there were lots from all those anticoagulant injections—was carefully measured with a concentric-ring template of questionable cleanliness.

Still, I sought signs of humanity in the scowling male nurse who had just handled my sore body as though it were merely a slab of meat.

“Where are you from,” I asked.

“Africa,” he said.

“Africa is a huge continent,” I said. “Where in Africa?”

Nigeria,” he said.

“Americans usually do not bother to ask,” he added.

I wanted to tell him that I, too, was foreign-born. That, as a former war refugee, I maybe knew more about what he had experienced than most native-born Americans. But my body desperately wanted to be left alone. So I switched to insouciance, texting my primary physician, “Help! I am trapped in a chintz nightmare,” referring the prevalence of floral-patterned materials wherever I tried to rest my troubled eyes.

That only worked until morning. Once I had a chance to systematically survey my surroundings, both my body and I shrank back. You see, nothing there resembled the microcosm that I had previously admired in hospitals, where people of many races, nationalities and religions worked together in seeming harmony. Here, everyone charged with the care of the patients’ bodies—from physicians to nurses to nurse’s aides—had some degree of dark skin. And most had strong foreign accents, as well. The resulting fear—after failing to find other explanations—was that management had cynically selected only recent immigrants. Not for their qualifications but because they—as my DP parents once had—would work for the lowest allowable wages.

Strangely, we withdrew even more from the patients, predominantly white and proficient in English. While some staff, at least, seemed to sense the precariousness of their situation, most of the patients appeared blithely indifferent to theirs. Take my my roommate—please. A frail old lady with signs of dementia, she donned her perfectly pressed khakis and pretty hot-pink cable-knit sweater, applied her makeup and had her hair and nails done at the in-house salon. The fact that she had to sleep with a bed alarm activated to keep her from wandering at night seemed to cause her little concern. Each time she stirred even slightly, the damned thing woke only me. All I could do was press the buzzer and wait for my aide. And she was never in a hurry.

The manner in which we distanced ourselves initially differed.  My body made the first move, appalled that showers were limited to twice a week at night. It harangued the day nurse, and he gave in, getting me daily morning showers by re-classifying them as “occupational therapy,” much to the chagrin of the aide. Then, it categorically refused to dress, opting to pull two fresh hospital gowns—one laced in the front covered by another laced in the back, which served as a robe—over my clean anatomy. And rather than dealing with the discomfort of rolling a wheelchair out to the dining room, it opted to take meals by its bed. Even though they all consequently arrived cold.

Then, it became more emphatic. It took the dry omelette and greasy sausage, along with the limp toast and reconstituted juice that it had reluctantly ingested and spewed it out in an impressive spray. After surveying the effect with pride, it focused on my other end, with even more dramatic results. Thus, in contrast to what had occurred prior to my hospitalization, there was no question that the correct communication mode was used. My body screamed,”I am seriously ill.” My nice new roommate, who had no need of bed alarms, understood. She asked to be moved out immediately, which promptly occurred. But still the staff did not take me seriously. “It’s just your antibiotic,” my day nurse said. Until 18 hours later, when I offered the night nurse a clear choice: “Either you contact the on-call doctor now or I call 911.”

That caught management’s attention. By the time that the Director of Nursing arrived the next day, I had compiled a long list of complaints dating back to my arrival. Which was supported the following day by the fact that a widespread gastroenteritis outbreak was underway. Suddenly, there were hushed staff meetings and aides disinfecting everything with the same efficacy that, no doubt, led to the problem in the first place. And the facility was closed to new admissions. So I never got another roommate. But all of that came too late to placate either my body or me. With the help of an aluminum contraption—I could not bring myself to call it a “walker”—we engaged in an undertaking to essentially turn me into an aging Twisted Sister. Soon, I was stomping around singing “We’re Not Gonna Take It,” albeit sotto voce.

To enhance the effect, it refused to style the hair that was assiduously washed and blow-dried each day, allowing the ill-considered asymmetrical cut that I had been growing out to form a crazed gray frame for my face. And shed the facility-provided slipper-socks that went so well with the facility-provided knee-length gowns for the ankle-length black leather boots that I had previously kept in the closet. At last, I had a gut-level feel for why certain musicians looked the way that they did. This cut-up gut was fed up with what those who sought refuge in the States had to stomach to survive. And how it would only get worse once forced to contend with a health care system—and a society, for that matter—that sought to segregated its seniors. Some form of external expression was required. And the uglier, the better.

The backdrop proved to be perfect. In moderate Maryland, ice-storms of rare ferocity raged. (The February of my confinement was the Baltimore area’s second coldest on record. ) Seen through the facility’s wall-to-wall windows and juxtaposed with the stifling heat inside, it had an appropriately apocalyptic feel. Which was supported by incessant TV and social media updates. Images of Jordanian pilot Muadh al-Kasasbeh being burned to death in a cage, American hostage Kayla Mueller being confirmed dead and hundreds of Assyrian hostages being seized, all at the hands of the Islamic State of Iraq and the Levant, assaulted our senses. I could see how much of this might be combined, with me as the star, in a stunning music video.

Alas, those in my audience capable of appreciating this vision were few in number. One was an Albanian immigrant who had become a physician when opportunities to pursue her career in public health had been closed to her here. She honestly addressed my concerns. And not only confirmed that I, and subsequently others, had been sickened by the facility but was also able to intelligently discuss the barbaric oppression that both our native lands had experienced at the hands of the former Soviet Union, which now, in a different form, was playing out in the Middle East and rapidly expanding its reach.

“ISIL is as much a threat to civilization as Stalin once was,” I said.

“There was one good thing about communism, though,” she said.

“It removed religion as a valid excuse for committing atrocities.”

(While religion was banned under all communist rule,  Albania, which is Islamic and Christian, is now—by constitution—a secular country.)

With such limited success, the only option was to take my body and leave. Which was not as easy as you might think. We had to perform all sorts of stunts to prove we could carry out the “activities of daily living.” (We could not, but the staff was easy enough to fool.) Once home with the aluminum contraption, my body learned to negotiate treacherous sidewalks and stairs, then drive me where I needed to be. To more doctor’s appointments than you could imagine—those tests had revealed new, unrelated problems—and to physical therapy, from which I transitioned to Gentle Yoga for Tranquility, which, at least, is doing my body some good. The rest of me, alas, lags far behind. This piece, for example, is the first thing that I have written in six months.

Note: I do not ascribe to Cartesian dualism, knowing enough neuroscience to find fault with basic tenets.  However, I must admit that at times like this the phenomenology is such that the body seems to have a mind of its own.

7 thoughts on “Body Language”

  1. The horror of your experience deserves the splendor of your writing. I have long been a fan as well as a friend, and one of the aspects of your writing I admire especially is its surgical precision. This piece is a prime example of that–and also of your global knowledge and concerns. Kudos, dear Ilse. I’m so glad to see this piece, glad you’re well enough to resume writing, glad you survived the ordeal.

    1. Thanks, Clarinda. And thanks for keeping me [electronic] company throughout that ordeal. And thanks, also, for the lovely flowers. It’s good to be writing again.

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